Resources library
Downloads:
Pediatric Complex Care Association
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Organization Name |
Description |
Website |
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| Commonwealth of Massachusetts Website Information |
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| Supplemental Security Income in Massachusetts | SSI information – | http://ssa.gov/pubs/11130.html | |||||||||||||||
| Children with Special Health Care Needs | provides comprehensive, affordable, accessible, culturally competent, high quality care and consumer education for everyone | www.hcfama.org | |||||||||||||||
| H.A.L.O. –
Help A Little One |
The Help A Little One Foundation is dedicated to enhancing the quality of life for children with neurological impairment. H.A.L.O. fulfills requests that enrich or make life easier for children in pediatric nursing homes and supports families who care for their children at home. | http://www.halofoundation.org/ | |||||||||||||||
| Easter Seals of Mass. | Equipment, education and loaning program | www.eastersealsma.org | |||||||||||||||
| Family TIES | Resource network for families whose children have special needs. | www.massfamilyties.org | |||||||||||||||
| Kids with Tubes | Support for families of children with g-tubes | www.kidswithtubes.org | |||||||||||||||
| Make a Wish Foundation of Greater Boston | Dedicated to granting the favorite wishes of children diagnosed with life threatening illnesses | www.mass.wish.org | |||||||||||||||
| Federation for Children with Special Needs | A center for parents and parent organizations to work together on behalf of children with special needs and their families. | www.fcsn.org | |||||||||||||||
| Disease/Syndrome Associated websites: |
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| Alliance for Technology Access |
Technology for children and adults with disabilities and functional limitations. | www.ataccess.org | |||||||||||||||
| Computer Technology Resources | Input on best technology for student needs | www.cec.sped.org | |||||||||||||||
| Family Center on Technology and Disability | Assists in evaluating technology for individuals. | www.fctd.info | |||||||||||||||
| Catastrophic Illness in Children’s Relief Fund | Helps families bear the excessive financial burdens associated with the care of children with special health care needs and disabilities. | http://www.mass.gov/cicrf/cicrf.htm | |||||||||||||||
| Floating Hospital for Children | 800 Washington Street Boston, MA 02111 (617)-363-5000 |
https://www.floatinghospital.org/ | |||||||||||||||
| Tufts-Medical Center, Inc. | 800 Washington Street Boston, MA 02111 (617)-363-5000 |
https://www.tuftsmedicalcenter.org | |||||||||||||||
| Children’s Hospital Boston | 300 Longwood Avenue Boston, MA 02115 (617) 355-6000 |
www.childrenshospital.org | |||||||||||||||
| Massachusetts General Hospital | 55 Fruit Street Boston MA 02114 (617)-726-2000 |
www.massgeneral.org | |||||||||||||||
| Boston Medical Center | One Boston Medical Center Place Boston, MA 02118 (617)-638-8000 |
www.bmc.org | |||||||||||||||
| Lowell General Hospital | 295 Varnum Ave. Lowell, MA 01854 (978) 937-6000 |
www.lowellgeneral.org | |||||||||||||||
| North Shore Children’s Hospital | 57 Highland Avenue Salem MA 01970 (978) 745-2100 |
http://nsmc.partners.org/pediatrics | |||||||||||||||
| UMass Memorial Medical Center |
119 Belmont Street, Worcester, MA 01605 |
www.umassmemorial.org | |||||||||||||||
| BayState Children’s Hospital | 759 Chestnut Street Springfield, MA 01199 413-794-0000 |
http://baystatehealth.com/ | |||||||||||||||
| Cerebral Palsy Guide | 3208 E. Colonial Dr.
#241 Orlando, FL 32803 |
www.cerebralpalsyguide.com | |||||||||||||||
| Cerebral Palsy Group | Cerebral Palsy Group provides educational information and support to those who have been affected by cerebral palsy. | https://cerebralpalsygroup.com |